Rare diseases are often defined as conditions affecting fewer than 1 in 2,000 people. Individually they are uncommon, but collectively they affect millions of people worldwide. Despite this, many people […]
The Global Nursing Network for Rare Diseases (GNNRD), in collaboration with Medics for Rare Disease, has announced the launch of ‘Rare Disease 101 (Nursing)’, a free, foundational eLearning course designed […]
🗓 Date: 2–4 June 2026 📍 Location: Prague & Online 🔗 Register: Sign up here Join EURORDIS‑Rare Diseases Europe for the largest patient‑led rare disease policy event in Europe! Over […]
Rare Disease Day 2026 is your chance to stand with the 3.5 million people in the UK living with a rare disease, and to take one small action that can […]
Mystery Monday is BACK and this week we are focusing on Familial Intracranial Aneurysms! Thank you so much to HBA Support for the fantastic resources! Be sure to stay in […]
Join the North Thames Genomic Medicine Service showcase to find out how genomic medicine is transforming healthcare in their region. Genomic medicine is coming into every-day-practice for multi-disciplinary healthcare professionals […]
The Rare Disease Podcast 4 Medics has launched! Each week we will bring you interviews with people from across the rare disease and medical world. We will be looking at […]
Register for your place on this international virtual conference hosted by Wolfram Syndrome UK and WellChild. The 10th WS conference will again be held as virtual events over 2 Saturdays […]
This unique webinar unites experts from primary care, advocacy and medical genetics within the rare disease sector to discuss the impact of the virus on the rare disease community. Participants […]
Findacure’s Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!